by Liz Colon | Jul 1, 2021 | Uncategorized
Sometimes no news, is good news. It’s been a while since I posted, mostly because things have been quiet, and we’ve just been living. BUT A few weeks ago, Angel looked at me and said, “I’m worried about Levi.” Angel rarely vocalizes his...
by Josh Walton | Oct 21, 2019 | Uncategorized
Sometimes no news is good news. We’ve been living “normally” for several months. When Levi’s doctor told us we could live again we took advantage and visited his grandparents in Florida, took day trips to King’s Dominion, Massanutten, and...
by Liz Colon | Dec 4, 2018 | Uncategorized
It’s been a while since I last posted an update on Levi. The good news is that there isn’t much to update. God has been faithful and merciful, he’s allowed us to live normally, for the most part. In August, we went for our first MRI to monitor for C,...
by Liz Colon | Aug 14, 2018 | Uncategorized
I’m excited but apprehensive to write this post. Someone recently told me the expression, “knock on wood” came from the men who were healed after knocking on Jesus’s cross as he carried it up to Calvary. Makes me feel better about knocking on...
by Liz Colon | Jul 31, 2018 | Uncategorized
I know many of you who are following Levi via the blog aren’t regularly on social media. We ran a fundraiser about a month ago for t-shirts. It was such a success that we’ve been asked to open it back up. If you want a t-shirt, you will be able to get one...
by Liz Colon | Jul 30, 2018 | Uncategorized
Wednesday we head to the hospital (Georgetown) with Levi. It’s time for a MRI and Biopsy to see how his liver is doing. He has been so well since we started the Rifampin, (antibiotic) I’m feeling extra anxiety about sedating him for the procedure. I hate...
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