Sometimes no news, is good news. It's been a while since I posted, mostly because things have been quiet, and we've just been living. BUT A few weeks ago, Angel looked at me and said, "I'm worried about Levi." Angel rarely vocalizes his concern, he holds it in, so we...

Sometimes no news is good news. We've been living "normally" for several months. When Levi's doctor told us we could live again we took advantage and visited his grandparents in Florida, took day trips to King's Dominion, Massanutten, and Virginia Beach. We had lots...

It's been a while since I last posted an update on Levi. The good news is that there isn't much to update. God has been faithful and merciful, he's allowed us to live normally, for the most part. In August, we went for our first MRI to monitor for C, we...

I'm excited but apprehensive to write this post. Someone recently told me the expression, "knock on wood" came from the men who were healed after knocking on Jesus's cross as he carried it up to Calvary. Makes me feel better about knocking on wood - not a...

I know many of you who are following Levi via the blog aren't regularly on social media. We ran a fundraiser about a month ago for t-shirts. It was such a success that we've been asked to open it back up. If you want a t-shirt, you will be able to get one...

Wednesday we head to the hospital (Georgetown) with Levi. It's time for a MRI and Biopsy to see how his liver is doing. He has been so well since we started the Rifampin, (antibiotic) I'm feeling extra anxiety about sedating him for the procedure. I hate...

This post is a hard one to write.  It's filled with so much fear and hope.  I'm going to address my last two videos first,  answering questions about the visit to UVA/Pittsburgh and the BSEP protein test, then getting into the C word and the Clinical...

On the night of August 6th, our daughter, Olivia was coughing throughout the night. We thought she might get Levi sick so we decided we would take her to the doctor in the morning. When she woke up it was like the cough didn't exist, so I quarantined her...